Years back my brother said to me – ” You have to stay past the boredom”.
Once again it has paid off for me with the discovery of the Blog below because I believe that something like this is what happened to my Izzy. One day when I feel stronger I will give you a run through of the year leading to his death. For tonight it is deeply settling to read this man’s experience and make sense of a time which made NO sense to me.
Izzy was a man inclined to be a little overweight if anything and he had very long healthy hair. Over a period of a couple of years he began to develop odd symptoms which noone diagnosed. Painful rash on his legs which I now know was cellulitis which I have had often since Sepsis hit me in 2014. A Doc in Coffs did a puncture test on it and the p;ain increased so much that we went to Sydney to see a doctor.
In this period his hair began to simply fall out. He developed what they said were shingles and was twice ambulanced to Coffs Hospital and put out on the street which a strong suggestion that he was managing it.
He lost over 30 kgs of weight.
Towards the very end his mind seemed to fail somewhat. One day when we were in my little hometown, he said -“M’Lady. Where is the Post Office?”
Neither of us had ever heard of sepsis . Then suddenly he was dead. Running in the forest and found dead beside the road.
Even the autopsy pathologist in Newcastle told me that whena man of his age with heart disease presented they were funded only to find that surface cause. I accepted it then but I don’t now.
That was June 2014 and in September I was comatose with ARDS SESPIS PNEUMONIA.
I believe it killed him and has devastated me.
June 25, 2018
93 Million Miles from the Sun
So it has been a while since I posted a blog and it has been for a very good reason. Actually, it is for a very scary reason. Simply put, I didn’t listen to my body because I was so busy with work and other things in my life. It all caught up with me though on May 12th when I went to the emergency room with a temperature of 101.3, feeling lethargic and sweating profusely. However, I have to backtrack all the way back to September 2017 to really give an understanding of what was happening to me.I was heading home from Washington, DC after attending the Council for Opportunity in Educational Annual Conference when an abscess appeared on my leg. I had never experienced anything like it and was off work for a few days while I waited for the antibiotics to take hold. This was my first visit to MedExpress in Beckley, WV. Hold tight, MedExpress makes several appearances over the next few posts. Things seemed to progress well with the medication but in the back of my mind, I wondered if the infection had completely gone away. I probably should have listened to my mind and body.Fast forward a few months and I am back at MedExpress. This time it is for a urinary tract infection. I am one of those lucky dudes that occasionally come down with a UTI. I have had issues with my kidneys and UTI’s since my junior year of high school that eventually led to surgery. So the doctor gives me meds and I go on my merry way. Now comes, April 24, 2018, and I am back at the doctor with another UTI. Another round of antibiotics and I think I will be back to normal in a few days. On the other hand, I should have known it wouldn’t be that simple. I found myself back at MedExpress on May 9th.To be continued….
93 Million Miles Part FiveBefore I begin this post, I want to thank everyone that has been reading about my journey with sepsis and MRSA. When I started writing this blog, my intent was to create a record of my experience and hope this it might help inform others. However, I didn’t imagine that I would have folks Australia, Ireland, the United Kingdom and Mexico reading my story. Again, thank you!
Researchers from Case Western Reserve University School of Medicine have discovered a way to stop immune cell death associated with multiple diseases, including sepsis, inflammatory bowel disease (IBD), and arthritis.
aa Rally in Coffs this weekend but I am not going. I do not have the energy even to walk to the Girls. I am having major difficulty breathing now.
O my golly gosh.
I am defeated.
I am HOME. Where I have been most of the week, I am slightly stir crazy and do believe I have developed several oddities of behaviour. Extremely reclusive. Sleeping most of the time. I don’t want to eat or wash.I have become peculiar. A lot of the time I am happy peculiar. Some of the time I am not.
Tonight is OK which makes me think that perhaps I really have been ill and extremely tired rather than depressed and anti-social. Lets look at some of my Sepsis Survivors so that I don’t keep doubting myself.
I generally know from certain signs when I am actually ill.
Its when I dont want to walk over the Girls’ place.
Its when I dont go the AA rally in Coffs.
Its when I cant breath enough to get to the top of the drive.
And when I do not want to eat.
So maybe I am ill.
How do you deal with no energy or anything.
Basically im 8 months post sepsis an i struggle nearly ever day to just get up an pull myself together, i have bad insomnia and an 8 months old. So i physically an mentally feel drained most of the day.
Dan When I constantly complain about not having any energy I get the impression my family and friends think I should just try harder. If they could live one day in my body they would understand how hard I try… mostly to no avail.
Edna It was over a year and on 3 sedating meds before I slept all night and there are still some nights where I only get 4 hours.
You definitely have to take things slow and not spread yourself too thin. Your body has been through a very traumatic event. I can only keep my grandchildren one at at time for a night or two once or twice s month because it wears me out.
Good luck to you!
AND HERE IS ONE THAT REALLY MEANS SOMETHING TO ME.
After sepsis/near-death experience-do you find yourself feeling unattached to material things to the point where you don’t want to do anything or buy anything for yourself? I feel like I don’t exist in my own home sometimes. It bothers me, but other times I feel good about not having much. All I have the compulsion to do is to pick up and travel, but life doesn’t allow for me to do that.
I feel stuck and in limbo-like I need to live my life and get out there, but also that nothing ultimately seems to matter. Did anyone else feel like this and if you got past it, how did you find a sense of purpose and direction again?